#HAWMC: Keep Calm and Do What?

patient autonomy, self-care

This post continues the month-long series called the Health Activist Writer’s Month Challenge (#HAWMC) created by WEGO Health.  Today’s writing prompt: Keep calm and carry on. Write (and create) your own Keep Calm and Carry On poster. Can you make it about your condition? Then go to (http://www.keepcalm-o-matic.co.uk/) and actually make an image to post to … Read more

#HAWMC: Talk of Good News

This post continues the month-long series called the Health Activist Writer’s Month Challenge (#HAWMC) created by WEGO Health.  Today’s writing prompt:  Best conversation I had this week. Try writing script-style (or with dialogue) today to recap an awesome conversation you had this week. I found this prompt extremely challenging and was about to give up. … Read more

What Do You Do When You Are Diagnosed with Pancreatic Cancer? (Part II)

In honor of Father’s Day, enBloom is featuring a special two part guest post from Helen W. She shares her family’s personal journey during her father’s battle with pancreatic cancer. This story powerfully illustrates the value of early screening as well as the benefits of taking an active role in managing your health care. A … Read more

Study Shows Asthma Coaches Reduce Rehospitalization

Patients with chronic illness must learn to recognize signs, symptoms, and triggers that exacerbate their condition. Then, they must proactively implement self-care techniques to best manage those symptoms and crises. While physicians prescribe medicines, draw up plans of care and provide instructions for these plans, low health literacy among many patients combined with time compressed office visits often leave patients bewildered when it comes to effectively managing their disease. In a randomized controlled study, Dr. Fisher and his colleagues at UNC at Chapel Hill used asthma coaches in a population of African American children with asthma to bolster health literacy and improve clinical outcomes. Community health workers familiar with the medical terms of an action plan, with good communication skills and the ability to work effectively with parents, served as asthma coaches. Using a coaching style that was both cooperative and supportive, home visit and phone call interventions were tailored to parents’ readiness to adopt the management practices. A coach’s job was to reinforce basic asthma education and encourage key behaviors for managing the disease. Through randomization, the patients received usual care or usual care with the addition of an asthma coach. Over the 24 months of the study, coaches averaged 21.1 contacts with the families. Among the asthmatics receiving this care, 36.5% were hospitalized subsequent to an emergency department visit compared to the 59.1% hospitalized subsequent to an emergency department visit for the asthmatics receiving usual care, a statistically significant difference between the two groups. In the March edition of the Archives of Pediatrics and Adolescent Medicine, Fisher and his colleagues published their findings,

Just When She Thought the Asthma Was under Control

First Friday in First Person. Asthma, which affects about 20 million people throughout the world is defined by the National Heart, Lung and Blood Institute as a common chronic disorder of the airways that is complex and characterized by variable and recurring symptoms, airflow obstruction, bronchial hyperresponsiveness (or bronchospasm), and an underlying inflammation. There have been a number of success stories in the management of asthma, such as Olympic champions Jackie Joyner-Kersee and Dara Torres whose stories are highlighted as a part of the Asthma All-Stars, an innovative campaign by the Breathe Easy Play Hard Foundation. Yet, the fact remains that it is becoming more and more common. Centers for Disease Control and Prevention, its prevalence in US children has increased from 3.6% in 1980 to 9% in 2001, driving families on repeated trips to the emergency room while sufferers in the crisis of an asthma attack, struggle to breathe. Recently, I had the opportunity to become acquainted with Melissa, a blogging mother who has two special needs children. For this month’s personal look inside disease, I’d like to share an experience she and her daughter had with a drug her daughter, Ava was taking to treat her asthma. It not only demonstrates some of the challenges of managing asthma but the type of proactive, informed advocacy that ensures the best care for patients.

Would You Have a Preventative Mastectomy

In 2004, Karen Aulner lived this tense seen after deciding to have the testing for mutations of the BRCA genes associated with aggressive breast cancers. Since that time, she has undergone preventive double mastectomy, three breast reconstructions, and most recently had her ovaries removed all in the hopes of preventing breast cancer. She was motivated, in part by her older sister’s battle with the disease which has included recurring tumors and ultimately metastatic disease all subsequent to a double mastectomy after diagnosis of the first turmor. While the actions of Auluner to stave off cancer may be considered by many to be drastic, a study led by Dr. Todd Tuttle found that over a five year period (1998-2005) the percentage of women with a tumor in one breast choosing bilateral mastectomy rose from 4.2% to 11% . “Women who have had cancer in one breast and have a BRCA mutation… have a risk of 3 percent per year of developing cancer in the opposite breast…and the risk is cumulative,” Dr. Tuttle explains.

National Cancer Control Month

Featured Health Observance. April is Cancer Control Month. Since 1938, this annual proclamation has given Americans an opportunity to focus on advances against cancer, as well as, rededicate themselves to fighting the disease both through pioneering research and prevention. President Obama observed:

“As researchers work daily to better understand this disease, Americans can take steps to decrease their risk of developing cancer. Individuals of all ages should seek regular and appropriate check-ups.

The Story of a Kidney

The television drama ER has been delivering excellent stories around death and dying as well as the misadventures of the walking wounded for fifteen years now. After a long break, I have returned to faithfully follow it’s final season and it has not disappointed. The plot and multiple story lines of ER are quite complex and unfold over weeks so serendipity was probably the cause for last night’s episode to deal with the topic of kidney disease and kidney transplants on World Kidney Day. As I discussed in Wednesday’s post, the purpose of World Kidney Day is to increase awareness. The aim is to prevent chronic kidney disease by encouraging people to make choices that support healthy kidneys and get appropriate screening test for kidney function when necessary.

Stroke, Not Just All in Your Head

While heart attack and congestive heart failure affect the vessels of and ultimately the heart itself, stroke is a result of complications in the vessels that supply the brain instead. This results in localized damage to the brain. Unfortunately, many people still do not recognize the signs of a stroke and therefore delay urgently needed treatment.

On Valentine’s Day, Give the Ultimate Gift of Love

On this Valentine’s Day, choose to give the ultimate gift of love by giving the gift of life through organ and tissue donation.

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    Visit the website for the book III GIFTS.

  • In The News

    The Herald-Sun presented a large feature of III Gifts poems and photographs to kick off National Donate Life Month. It included the articles, A Living Tribute and Love of Arts... providing a comprehensive and personal perspective of organ donation.  Be sure to check them out by clicking on the links above. Read Brotherly Love in the Summer 2011 issue of Emory Magazine. Listen to interviews at PoliticalJones.com , 2 City News and Karen Francis' Positive Inspiration on BlogTalkRadio.com.
  • Reader Rave Reviews

    "very insightful" ~ Cliff Bellamy, Book & Entertainment Editor of The Herald Sun
    "Guns can end lives, but they can’t kill spirits. Now I find that a single bullet could not silence his voice." ~ H. Beverly Crawford of Los Angeles, CA
    "The book is exquisite...[t]he pieces are meaningful, in more ways than I would know.  There were three poems that especially touched me: Another Level, Eternal Passage, and I Wish I Were God." ~ Shelby Heard of Washington, DC
    "Every time I read III Gifts by Carey Hughley  I see several additional nuances that not only touch me in a profound way but also gain my respect all the more. Books can be good friends as they are extensions of the author. That's why I'm introducing anybody reading my blogs to this one." ~Robeson White, Co-Founder, Diversity in Aquatics
    "I am persuaded that Carey’s III Gifts will be as powerful in the distant future as it is in 2011...its essence comes through best when read at quiet times and the soul can better attune to its inherent beauty, spirituality and the challenges it poses all of us." ~  Walter Brown of Durham, NC
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